Hormones are substances produced in the body. They are responsible for transmitting messages from one organ to another to ensure proper functioning. Endocrine illnesses occur when hormones malfunction. They are considered chronic when there is no cure and require life-long treatment.
Type 1 Diabetes (T1D), Congenital Adrenal Hyperplasia (CAH), and Osteogenesis Imperfecta (OI) are examples of these types of illnesses. When they occur and are not properly treated, children’s well-being, learning ability, play, and overall physical development are affected. These conditions require essential daily medication, frequent medical check-ups, and special care, forcing children to learn to live this way.
Children and adolescents with chronic endocrine conditions need medication and specialized medical care for the rest of their lives.
In Colombia, however, children with these conditions do not have access to medical treatment.
Factors such as economic conditions, place of residence (rural vs. urban), parents' (or caregivers') level of education, and the healthcare system they are covered by contribute to significant inequality.
This creates a striking disparity that impacts the quality of life of patients (children and adolescents), affecting their school attendance, preparation for a productive life, and ability to socialize. In some cases, it even increases their risk of death.
The SiEndo Foundation was created in March 2024 with the goal of supporting this population. We work to strengthen and build communities that enable children and adolescents with treatable
but incurable illnesses live a full life.
We aim to diminish the inequality of the access to the highest level of health and well-being for children who are living with chronic endocrine conditions.
We help guide the way to diagnosis, treatment, and medical follow-up.
We ease the access to information and education to empower the ability to lead independent lives with opportunities
and experiences to ensure that they and their families can reach their full potential as citizens.
It is estimated that in Colombia, according to the Ministry of Health and Social Protection, there are approximately 18,043 people diagnosed with Type 1 Diabetesof whom 3,222 are children and adolescents. Each year, 436 new cases are reported in children.
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